Thursday, March 28, 2024

Anonymous man donated Rs 11.6 crore to Kerala toddler diagnosed with SMA

In a humanitarian spirit, an anonymous man has donated Rs. 11.6 crore (1.4 million dollar) to help a Kerala family seeking support for the treatment of a 15-month-old son who has been diagnosed with Spinal Muscular Atrophy (SMA).

Nirvaan is the son of Sarang Menon and Adithi Nair, a couple hailing from Palakkad district. The family is settled in Mumbai.

The couple has resorted to crowdfunding as the treatment for SMA costs about Rs 17.5 crore. Zolgensma by Novartis is a one-time drug for the disease.

They received 16.3 crore so far, reported The Fourth, a Malayalam news website.

Nirvaan was diagnosed with SMA on January 13, according to The News Minute.

The couple had met the state Health Minister Veena George on 25 January, and the latter offered help from the government.

The family also approached Union Finance Minister Nirmala Sitharaman for GST exemption.

SMA is a genetic disease that causes muscle weakness and progressive loss of movement due to deterioration of motor neurons. The disease also affects muscle functioning including breathing, swallowing and basic movement. In its severest form and when it is untreated, it can lead to permanent ventilation or death. The drug can only be administered to children below the age of two to arrest the progression of the disease.

Those who wish to support the family can deposit the money in account number: 2223330071555889. IFSC code: RATNOVAAPIS. Account name: Sarang Menon. Milaap UPI ID:givetomlp.nirvaanamenon1@icici. His mobile number is 9895845869.

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